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Hi all...
I'm new to MilwaukeeMoms but am not a new mother. I am a proud single mother of a 4 year old diva princess who happens to have metaphyseal dysplasia. This is a genetic disease that is fairly new (about 60 years old) that affects a child's bones. My daughter's dysplasia is concentrated in her hips and long bones in her legs with some evidence of it in her arms and hands. The dysplasia is actually a issue with her cells: they are abnormal and will grow abnormally until she stops growing and she will require multiple surgeries because of it.
First born girls are usually have this genetic disease and a good indicators of the disease are wryneck (a crooked neck or torticollis), breech birth, and delay in learning how to walk or walking.
Because of this disease she's had four surgeries since she was two years old...and it was initially thought by her dr. that she wouldn't be walking by the time she's four. But now she's running all over the place, can walk, can climb stairs (something she was NEVER able to do), and is taking ballet! She can't skip but that is something that she is working on.
Are there any other mothers dealing with this issue?
Thanks!
KMN08
I'm new to MilwaukeeMoms but am not a new mother. I am a proud single mother of a 4 year old diva princess who happens to have metaphyseal dysplasia. This is a genetic disease that is fairly new (about 60 years old) that affects a child's bones. My daughter's dysplasia is concentrated in her hips and long bones in her legs with some evidence of it in her arms and hands. The dysplasia is actually a issue with her cells: they are abnormal and will grow abnormally until she stops growing and she will require multiple surgeries because of it.
First born girls are usually have this genetic disease and a good indicators of the disease are wryneck (a crooked neck or torticollis), breech birth, and delay in learning how to walk or walking.
Because of this disease she's had four surgeries since she was two years old...and it was initially thought by her dr. that she wouldn't be walking by the time she's four. But now she's running all over the place, can walk, can climb stairs (something she was NEVER able to do), and is taking ballet! She can't skip but that is something that she is working on.
Are there any other mothers dealing with this issue?
Thanks!
KMN08
1 Comment for "Metaphyseal Dysplasia"
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Hi,
I leave in france and after some rechearch in internet about metaphyseal dysplasia, i hace your post.
I don't write inglish very well but i will try to explain you my situation.
I have 4 girls and my fourth girl have 15months and when she was born she was very small, after enougth examinations , the geneticians doctor say us that she has a metaphyseal dysplasia.
Like your daugther, she has small bones (her arms and legs are small), she don't at thus time other health problem, and we hope that she will don't have other in the future.
She his 60cm at 15months and in january she will begin a growth hormon treatment and i hope she will growth a little !
And your dauthger does she have too a severe growth disorder , ? It 's difficult to found someone who have this deases and i hope we will correspondate together and echange our experience !
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